Jojo Looking for a Cure, Inc. - 19418 N 1300th St. - Effingham, Illinois 62401, United States

Welcome to Jojo Looking For A Cure, Inc.Since August 2016 Party Bus Rentals

Bus Rentals (private parties) Text Doug Weddell... 618-554-4237

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A not-for-profit Organization

About Rett Syndrome

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Rett Syndrome is a severe neurodevelopmental disorder primarily affecting females, with an estimated prevalence of one in 10,000 females.


There are no approved treatments available. Rett Syndrome is characterised by loss of acquired fine and gross motor skills and the development of neurological, cognitive and autonomic dysfunction, which leads to loss of ability to conduct daily life activities, walk or communicate.


Rett Syndrome also is associated with a reduced life expectancy. Approximately 25 percent of the deaths in patients with Rett Syndrome are possibly related to multiple cardio-respiratory dysrhythmias that result from brain stem immaturity and autonomic failure.


More than 95 percent of these patients have a random mutation in the MECP2 gene. Episodes of apnea, hyperventilation and disordered breathing are found in approximately 70 percent of patients with Rett Syndrome at some stage of their life.

About Us

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We are a dedicated team here at "Jojo Looking For A Cure, Inc." in raising money for Rett Awareness and Finding a Cure. We raise funds by party bus rental services and fund raisers in Effingham and surrounding areas. It is our mission to create as much attention to this cause as we can so we can do our part in finding a cure for Rett Syndrome. This cause is near and dear to our family because we are affected by this gene disorder through family on an every day basis. We will not stop until a cure is found.


About Jojo

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I AM A GIRL


If you can look past these legs that don't work, you will see that I am a girl

If you can look past these hands that don't work, you will see that I am a girl

I you can look past the screaming from frustration and pain, you will see that I am a girl

I you can look past the voice that isn't there, you will see that I am a girl

Rett Syndrome, you may take my body but you will never take my mind and my spirit

For these legs long to walk with you 

For these hands long to reach out to you

For this body longs to feel comfort and peace

And this voice longs to tell you "I love you"

I am a girl

by Lisa Anne Weaver for Ashley Bernadette Simard and all of our Rett Angels



Contact Us

Jojo Looking For A Cure, Inc.

Bus Rentals (private parties) Text Doug @ (618) 783-3214